LAM Treatment Alliance Fast Tracking Treatment Research

TSI/ LTA Global Partnerships Summit

Saturday, September 13, 2008
University of Sussex, Terrace Room Brighton, UK
Saturday, September 13, 2008

Agenda
13:00 Lunch

13:15 - 13:30 Introductions – Amy Farber, PhD (LAM Treatment Alliance, Executive Director) and Vicky Whittemore, PhD (TS Alliance, VP & Chief Scientific Officer)

13:30 – 13:40 Meeting Goals - Amy Farber, PhD and Vicky Whittemore, PhD

13:40 – 14:05 TSC/LAM Clinical Trials – Amy Farber, PhD and Vicky Whittemore, PhD

14:05 – 14:35 National Disease Research Interchange (NDRI) LAM Tissue Program – Jeff Thomas, NDRI with special opening message about the importance of registering to donate – Claire Gonsalves, patient’s daughter

14:35 – 15:05 Break

15:05 – 15:35 TSC Natural History Database and TSC 1/2 Variation Database – Vicky Whittemore

15:35 – 16:05 LAMsight – Ian Eslick, MIT Media Lab

16:05 – 16:50 Partnering opportunities for support, education, clinical care, and research – Group Discussion

16:50 – 17:20 Development of Working Group for partnering opportunities – Group Discussion

17:20 – 17:35 Next steps – Amy Farber, PhD and Vicky Whittemore, PhD

17:35 – 19:00 Break

19:00 - Hosted dinner at Al Duomo Restaurant 7 Pavilion Buildings, Brighton BN1 1EE


Sunday, September 14, 2008
LAMsight Session
University of Sussex, Brighton, Terrace Room UK

Agenda
10:00 - 10:15 Tea and Informal Networking

10:15 – 10:20 Introductions – Amy Farber, PhD (LAM Treatment Alliance, Executive Director)

10:20 – 10:25 Meeting Goals - Amy Farber, PhD and Ian Eslick, MIT Media Lab

10:25 – 10:50 LAMsight – Ian Eslick, MIT Media Lab Presentation

10:50 – 11:20 Question and Answer session, Feedback

11:20 – 11:45 Networking / Adjourn

LAM Treatment Alliance

E-mail: info@lamtreatmentalliance.org

Address: 64 Church Street, 2nd floor; Cambridge, MA 02138; USA

Phone: +1 (617) 460-7339

Fax: +1 (617) 864-0614


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