LAM Treatment Alliance Fast Tracking Treatment Research

The LAM Catalyst:

The BWH Center for LAM Research and Clinical Care Download a PDF

The LAM Treatment Alliance has partnered with Brigham and Women's Hospital (BWH) and Harvard Medical School to establish a leading-edge Center for LAM Research and Clinical Care. As the largest thoracic surgery center in the country, its unique history and commitment to advancing women's health, its seamless integration with Dana-Farber Cancer Institute (DFCI), and the pulmonary division's reputation for excellence, BWH is the ideal setting for this first-of-its-kind clinical center. This is the highest-caliber Center with more than $2M in institutional commitment and top-level support from leadership at these institutions. This Center takes a holistic, multi-disciplinary approach to the clinical care of individual patients at all stages of disease progression and actively partners with other clinical care institutions throughout the United States and internationally in order to fast-track bench-to-bedside learning to benefit patients in record time.

The Center for LAM Research and Clinical Care at Brigham and Women's Hospital is focused on providing excellence in clinical care and offering the most up-to-date research for women with lymphangioleiomyomatosis (LAM). The combination of comprehensive clinical care and leading-edge research creates an ideal setting in which to increase our understanding of LAM pathogenesis and treatment. Partnership with the BWH Center for LAM Research and Clinical Care and other similar centers throughout the United States and the world enhances the LAM Treatment Alliance’s ability to drive an accelerated agenda for LAM research globally.

LAM Clinical Services at the BWH Center for LAM Research and Clinical Care

The Center for LAM Research and Clinical Care is comprised of a multi-disciplinary team of clinicians providing patient-focused care to women at all stages of the Disease. Clinical services include:

  • Coordinated support and care management through the Center’s nurse coordinator
  • Comprehensive diagnostic testing for newly referred patients and formulation of a detailed disease management plan
  • Access to a variety of designated specialists to assist in management of the specific health concerns of women with LAM
  • Highest-quality screening and care, through our strong partnership with the Herscot Center for Tuberous Sclerosis Complex (TSC) at Massachusetts General Hospital, for patients with both LAM and TSC
  • Assistance with travel logistics for patients living outside of the United States, provided by the Center’s research and clinical care coordinator in cooperation with the BWH International Office. Need-based financial assistance may also be available through the LAM Treatment Alliance.

We are delighted to have a leading light in LAM research, Dr. Elizabeth (Lisa) Henske, MD, serving as the Scientific Director of this ground-breaking initiative. Dr. Henske joined the staff of Brigham and Women’s Hospital and the Harvard Medical School Faculty in September 2008. For more information about the BWH Center for LAM Research and Clinical Care, please contact info@lamtreatmentalliance.org with "BWH Center" in the subject line.

Contact Information

If you are a researcher or clinician interested in learning more about LAM, the Center’s active research protocols, clinical trials or the Center’s Tissue Repository, please contact the Center. If you are interested in the LAM Treatment Alliance’s research strategy and priorities or the International LAM Registry, please contact the LAM Treatment Alliance.
To learn more about the Center's team visit the Center for LAM Research and Clinical Care.
To find out more information, visit the The Center for LAM Research and Clinical Care Homepage.

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